CNY Celiac Support Group

Helping People With Gluten Intolerance in the CNY Area Live a Happy and Healthy Gluten-Free Lifestyle!









Mission Statement

The Central New York Celiac Support Group was formed to share support and understanding in helping us manage our lives well without gluten, and to create greater understanding of celiac disease and gluten sensitivity in both the lay and professional community.


Celiac and Gluten Sensitivity

For people with celiac disease, ingesting even tiny amounts of gluten can set off an autoimmune reaction that flattens the finger-like villi lining the small intestine. The most common symptoms are bloating, gas, diarrhea and constipation, as well as early osteoporosis. The autoimmune reaction can also cause skin rashes, chronic fatigue, bone and joint pain, neurological problems, liver problems, diabetes, infertility in both men and women and cancers, including lymphoma. An estimated three million Americans have celiac disease - and the vast majority don't know it because it can have no symptoms or mimic other diseases...

There are many undiagnosed cases of celiac disease. In order to get accurate test results, a person should not have been following a gluten-free diet. It is important to have accurate celiac testing because there are many negative effects of untreated celiac disease.

... Continue reading at http://online.wsj.com >>

More information:

What is gluten intolerance? What is celiac disease? (MNT article)

Celiac Disease - YouTube

Celiac disease
Gluten sensitivity
Celiac Disease Centers
Gluten Free Resource Directory
Gluten-Free Diet Forum


BEWARE !!! New Gluten Free Labels


Don't be surprised to see "wheat starch" in some G.F. products this year. New F.D.A. rules allow wheat starch in G.F. foods, if the wheat starch is specifically processed to remove gluten. [Read More] >>




Making Tracks for Celiacs Center for Celiac Research At Massachusetts General

SUNDAY April 26-th 2015 Jamesville Beach Park, Jamesville, NY


Registration begins at 10:00

1 Mile Walk or 5k Cross Country Run at 11:00 AM

  Letter From Alessio Fasano, Director of Center for Celiac Research

Pre-register online at celiacwalk.org by April 20th, or come early and register the morning of the walk

$25 registration fee ages 13 and older $10 – age 12 and under
T-shirts for those who pre-register. 5 years and under free (no T-shirt)

** For every $100 you raise in donations, you will receive 1 raffle ticket to be entered to win a $100 gift certificate to DESTINY USA!

Gluten Free Taste of CNY

Gluten free restaurants and Vendors with samples. Great Raffles. Games, face painting & balloons for kids. Prize for the most donations collected.

For more information or if available to help, call Karen Dorazio (315) 469-8154 or email her at: kdorazio@twcny.rr.com

Note: For free admission to the park, mention "Celiac Walk" at the entrance booth.

Collecting GF food for local needy families

For every GF non-perishable item you bring to donate, you will receive two raffle tickets for our basket raffle!



Our Next Meeting

Date: April 12, 2015, 2 pm – 4 pm

Topic: Wake Up Your Taste Buds and Try Something New

Do you love bagels? If so, you'll want to attend our next meeting. Mildred Mann, one of our members with help of her sister and daughter, will demo the step-by-step preparation of her delicious GF bagels. Mildred a long time baker, starting baking GF when her daughter was diagnosed with celiac disease.

Suzanne Anthony, owner of Hunka Foods, a new local bakery, will demo ways to prepare GF all purpose flour blends and offer baking tips. Hunka Foods are available at Natur-Tyme and Green Planet. All ingredients are natural, organic, non-gmo, and dairy free.

Also Nancy Mangano, owner of Vin-Chet Pastry Shop, will be bringing their new line of GF baked goods for us to sample. They are available at local TOPS Markets.

Hope you can come, taste, and enjoy these GF products. Meetings are free to attend. All are welcome.

Meeting Location: Town of Dewitt Community Room (Behind Carrier - next to E. Syracuse Fire Dept)148 Sanders Creek Parkway (off Kinne Street), E. Syracuse


Dr. Beg is Assistant Professor of Pediatric Gastroenterology and Nutrition at SUNY Upstate University. Dr. Beg will give us an in-depth view of Celiac Disease, which will include a Power Point presentation.

He has also done much research on diseases associated with Celiac Disease, such as Down Syndrome.

Dr. Beg has received many awards and honors, including Best Doctors of America award.

Read More about Mirza Beg, MBBS, MD, AGAF >>




Celiac disease and autoimmune-associated conditions

Celiac disease (CD) is frequently accompanied by a variety of extradigestive manifestations, thus making it a systemic disease rather than a disease limited to the gastrointestinal tract.....

... Continue Reading at PubMed.gov >>

  Download (pdf)



Need help one-on-one with the GF diet? You may want to schedule an appointment with Julie.

Hostital stays made safe for celiacs

Celiac disease or gluten intolerance -
Before you are admitted to the hospital
(PDF) 

Cecelia’s Marketplace Gluten-Free Grocery Shopping Guide, New Edition-
Great reference for anyone who needs a GF diet.

All recommendations, information, dietary suggestions, product news, menus, recipes, and related data generated by the CNY Celiac Support Group are intended for the benefit of our members and other interested parties. Individuals should consult with their physician before following any medical or diet recommendations mentioned in this website. Food manufacturers' products are subject to formula change at any time, and these changes may not be reflected on labels. Products mentioned do not constitute endorsement. Liability is implied by or assumed for the use of information contained in this website.