CNY Celiac Support Group

Helping People With Gluten Intolerance in the CNY Area Live a Happy and Healthy Gluten-Free Lifestyle!









Mission Statement

The Central New York Celiac Support Group was formed to share support and understanding in helping us manage our lives well without gluten, and to create greater understanding of celiac disease and gluten sensitivity in both the lay and professional community.


Celiac and Gluten Sensitivity

For people with celiac disease, ingesting even tiny amounts of gluten can set off an autoimmune reaction that flattens the finger-like villi lining the small intestine. The most common symptoms are bloating, gas, diarrhea and constipation, as well as early osteoporosis. The autoimmune reaction can also cause skin rashes, chronic fatigue, bone and joint pain, neurological problems, liver problems, diabetes, infertility in both men and women and cancers, including lymphoma. An estimated three million Americans have celiac disease - and the vast majority don't know it because it can have no symptoms or mimic other diseases...

There are many undiagnosed cases of celiac disease. In order to get accurate test results, a person should not have been following a gluten-free diet. It is important to have accurate celiac testing because there are many negative effects of untreated celiac disease.

(From http://online.wsj.com)

More information:

What is gluten intolerance? What is celiac disease? (MNT article)

Celiac Disease - YouTube

Celiac disease
Gluten sensitivity
Celiac Disease Centers
Gluten Free Resource Directory
Gluten-Free Diet Forum


Our Next Meeting

Date: September 13, 2015, 2 pm – 4 pm

Topic: Other Autoimmune Diseases Associated with Celiac Disease

Speaker: Diana Stuber R.D.

Meeting Location: Town of DeWitt Community Room (next to E. Syracuse Fire Dept) 148 Sanders Creek Parkway (off Kinne Street), E. Syracuse, NY. Take James St. to Kinne St. Turn left. Go exactly one mile to Sanders Creek Parkway. Turn right. The Community Room will be on the right, next to the Fire Department. Park in the lot on the left side of the building.

Diana Stuber R.D.

Many of those diagnosed with Celiac Disease should be aware that you may have another autoimmune disease.

At our next meeting, Diana will share her professional and personal experience of living with CD and diabetes. And warn us of symptoms to be aware of.

Diana is a Registered Dietitian and Certified Diabetes Educator at the Joslin Diabetes Center in Syracuse.



Celiac Strong Summer Camp in Ithaca, NY

July 26-29, 2015

Celiac Strong Camp 2015

This camp is worry-free place for boys and girls with Celiac or gluten intolerance between 7-16 years old. The camp will be located at Comstock (Taughannock Blvd, Ithaca, NY 14850), a Girl Scout camp in Ithaca, NY.

Registration is open and there are 37 spots left ( April 7-th). REGISTRATION CLOSES JUNE 1-ST!

For More Information and Registration visit http://celiacstrong.weebly.com



Celiac disease and autoimmune-associated conditions

Celiac disease (CD) is frequently accompanied by a variety of extradigestive manifestations, thus making it a systemic disease rather than a disease limited to the gastrointestinal tract.....

... Continue Reading at PubMed.gov >>

  Download (pdf)


Recall – Amy's Kitchen Products

The U.S. Food and Drug Administration has issued a major recall of Amy’s Kitchen frozen spinach products over possible listeria contamination. Products include Amy’s Garden Vegetable Lasagna.

A full list can be found at http://amys.com/news/press-releases. Look for “Amys Kitchen Recalls”.



Need help one-on-one with the GF diet? You may want to schedule an appointment with Julie.

Hostital stays made safe for celiacs

Celiac disease or gluten intolerance -
Before you are admitted to the hospital
(PDF) 

Cecelia’s Marketplace Gluten-Free Grocery Shopping Guide, New Edition-
Great reference for anyone who needs a GF diet.

All recommendations, information, dietary suggestions, product news, menus, recipes, and related data generated by the CNY Celiac Support Group are intended for the benefit of our members and other interested parties. Individuals should consult with their physician before following any medical or diet recommendations mentioned in this website. Food manufacturers' products are subject to formula change at any time, and these changes may not be reflected on labels. Products mentioned do not constitute endorsement. Liability is implied by or assumed for the use of information contained in this website.