CNY Celiac Support Group located in Syracuse

For people with celiac disease, ingesting even tiny amounts of gluten can set off an autoimmune reaction that flattens the finger-like villi lining the small intestine. The most common symptoms are bloating, gas, diarrhea and constipation, as well as early osteoporosis. The autoimmune reaction can also cause skin rashes, chronic fatigue, bone and joint pain, neurological problems, liver problems, diabetes, infertility in both men and women and cancers, including lymphoma. An estimated three million Americans have celiac disease - and the vast majority don't know it because it can have no symptoms or mimic other diseases.

Separately, a smaller group of people have a specific allergy to wheat; exposure can lead to rashes, asthma and even anaphylactic shock.

A third category of people - as many as 20 million Americans - appear to be sensitive to gluten without having full-blown celiac disease. For them, symptoms may be less typical, involving depression, mental fogginess, mood swings and behavior changes. Much less is known about this group.

"It's only in the last couple of years that we have realized there truly is a third condition that involves the immune system, but in a different way than a typical allergy or autoimmune reaction," says Alessio Fasano, a celiac expert at the University of Maryland School of Medicine.

(from http://online.wsj.com August 24.2010)

There are many undiagnosed cases of celiac disease. In order to get accurate test results, a person should not have been following a gluten-free diet. It is important to have accurate celiac testing because there are many negative effects of untreated celiac disease.

More information about celiac disease and gluten sensitivity

Walk-a-Thon

Saturday May 12, 2012 at Jamesville Beach Park

REGISTRATION begins at 10:00 a.m.
1 Mile Walk or 5K Cross Country Run at 11:00 a.m.

**Online registration is now open** at www.celiacwalk.org by April 30-th, or come early and register the morning of the walk
Registration fee $15 if registered by 4/30, $20 after 4/30 and day of event ~ children 12 and under $8 (to cover cost of shirt)

Amenities

T-shirts to all who pre-register

GREAT raffles

Basket awarded to the participant who raises the most money

For all who raise $100 or more, you will automatically be entered to win an undisclosed prize

Gluten free sampling by local restaurants and businesses

Goody bag for each family in attendance

Games, bubbles and face painting for kids

** FOR EVERY $100 YOU RAISE IN DONATIONS ~ you will receive 1 raffle ticket to be entered to win an XBOX KINECT AND A NOOK

** COLLECTING for the FOOD BANK OF CNY ~ For every gluten free non-perishable item you
bring to donate to our local food bank, you will receive a raffle ticket for our basket raffle.

** **NEW** ~ This year we will be donating 10% of proceeds from the event to gluten free families in need.

** VOLUNTEERS NEEDED!! ~ We are in need of volunteers to help make this event run smoothly! We need volunteers to help set up, hand out t-shirts, kids games and balloons, hand out flowers to Moms, sell bracelets and magnets and clean up. Please contact me at your earliest convenience if you are able to help!

Directions to Jamesville Beach,
From I-81 or I 690 to I 481, take exit 2, Jamesville Road. Go south on Jamesville Road into village of Jamesville. Take a RIGHT onto Route 173 then an immediate LEFT onto Apulia Road. 1.5 miles to park entrance, park is on your LEFT.

* Mention “Celiac Walk” at the booth for free admission.
* Handicap parking on pavement, all others, please park on grass.

Messages From Our Group Members:

"Just wanted to let everyone know I recently purchased Fruity and Cocoa Pebbles marshmallow treats! They say gluten free right on the box. I love that they are individually wrapped so I can put them in my son's lunchbox and they are great to send in for the whole class as a birthday snack.

So far I have only been able to find them at Walmart in the cereal aisle right next to the rice krispie treats. I checked Wegman's but they did not start carrying this product yet. I am going to check Target also. Hope you enjoy this great little treat!"

Elizabeth D.

"I have been searching for a long time for a gluten free/high protein/no to low sugar energy bar. I love Boomi Cashew-Almond bars but they had to go and tamper with a good thing - increasing the sugar content from 3g to 13g (and changing the name to Prana Bars). Well, I was introduced recently to Think Thin Bars. They have 0-4 grams of sugar, 20 grams of protein, are gluten free, and the rest of the ingredients are pronounceable.

Best of all they do taste good and they are at least half the price of many other bars! Wegman's Nature's Marketplace carries 4 flavors: Chocolate Fudge, Brownie Crunch, Creamy Peanut Butter, and Crunchy Peanut Butter.

Visit their site, www.thinkproducts.com, to see their other flavors and learn more about their products."

Sue P.

Helping People With Gluten Intolerance in the CNY Area Live a Happy and Healthy Gluten-Free Lifestyle!

Mission Statement

Celiac and Gluten Sensitivity

Walk-a-Thon

Saturday May 12, 2012 at Jamesville Beach Park

Messages From Our Group Members:

		CNY Celiac Support Group Helping People With Gluten Intolerance in the CNY Area Live a Happy and Healthy Gluten-Free Lifestyle!