CNY Celiac Support Group

Helping People With Gluten Intolerance in the CNY Area Live a Happy and Healthy Gluten-Free Lifestyle!






Mission Statement

The Central New York Celiac Support Group was formed to share support and understanding in helping us manage our lives well without gluten, and to create greater understanding of celiac disease and gluten sensitivity in both the lay and professional community.


Celiac and Gluten Sensitivity

For people with celiac disease, ingesting even tiny amounts of gluten can set off an autoimmune reaction that flattens the finger-like villi lining the small intestine. The most common symptoms are bloating, gas, diarrhea and constipation, as well as early osteoporosis. The autoimmune reaction can also cause skin rashes, chronic fatigue, bone and joint pain, neurological problems, liver problems, diabetes, infertility in both men and women and cancers, including lymphoma. An estimated three million Americans have celiac disease - and the vast majority don't know it because it can have no symptoms or mimic other diseases...

There are many undiagnosed cases of celiac disease. In order to get accurate test results, a person should not have been following a gluten-free diet. It is important to have accurate celiac testing because there are many negative effects of untreated celiac disease.

(From http://online.wsj.com)

More information:

What is gluten intolerance? What is celiac disease? (MNT article)
Celiac disease
Gluten sensitivity
Celiac Disease Centers
Gluten Free Resource Directory
Gluten-Free Diet Forum

Eating Gluten-Free for Health new

Celiac disease and autoimmune-associated conditions

Celiac disease (CD) is frequently accompanied by a variety of extradigestive manifestations, thus making it a systemic disease rather than a disease limited to the gastrointestinal tract.....

  Download (pdf)



Walk-a-Thon - Making Tracks for Celiacs

SUNDAY April 30-th 2017 at OVERLOOK Pavilion at Jamesville Beach Park

The CNY Celiac Group will be hosting the 16th Annual Making Tracks for Celiacs

1 Mile Walk/5K Run

As always, in addition to the walk/run, we will have GREAT vendors with samples of Gluten Free foods, raffles and games for kids.

Partnering with Carrabba's Italian Grill ~ Sponsored by Wegmans
Registration begins at 10:00 ~ Walk/Run begins at 11:00

You can get more information and Pre-register before April 26th at www.celiacwalk.com

Adults: $25 ~ Children $10 (5 & under free) until April 26th
After April 26th and the morning of the event, registration will be: Adults $30 and children $15

* We will have gluten free vendors with samples and products available to purchase
* Great raffles
* Face painting, games and balloons for kids

Carrabba's Italian Grill will be serving lunch at this year's event! Carrabba's is also having a CARES night on TUESDAY April 25th! at Carrabba's in Town Center, Fayetteville. They will donate 15% of your check to the CNY Celiac Group to help local gluten free families in need.

For every $250 you raise in donations, you will receive 1 ticket to be entered into a raffle to win a $150 Visa Gift Card

Anyone interested in volunteering, or wishing to make a donation towards our raffles, please let me know.

Many thanks to all of you who have helped in the past to make this event so successful.

 

Walk-a-Thon CoOrdinator: Karen Dorazio (315)-469-8154< email >



Gluten Free at NJY Camps

June 9-11, 2017

Price per child (0-18) – Free

Price per adult – $275

570 Sawkill Road Milford, PA 18337

Celiac Strong Camp 2015

In keeping with the NJY Camps mission of providing every child with the opportunity to experience overnight camp, a dedicated, GIG (Gluten Intolerance Group) certified gluten-free kitchen opened in summer 2011.

This kitchen helps to ensure that anyone who has Celiac Disease or lives a gluten-free lifestyle can participate in camp. Our kitchen is supervised by a staff parent with Celiac or a parent who has a child with Celiac

However, Gluten Free at NJY Camps goes way beyond the kitchen...[read more at njycamps.org

 




Need help one-on-one with the GF diet? You may want to schedule an appointment with Julie.

Hostital stays made safe for celiacs

Celiac disease or gluten intolerance -
Before you are admitted to the hospital
(PDF) 

Cecelia’s Marketplace Gluten-Free Grocery Shopping Guide, New Edition- Great reference for anyone who needs a GF diet.



All recommendations, information, dietary suggestions, product news, menus, recipes, and related data generated by the CNY Celiac Support Group are intended for the benefit of our members and other interested parties. Individuals should consult with their physician before following any medical or diet recommendations mentioned in this website. Food manufacturers' products are subject to formula change at any time, and these changes may not be reflected on labels. Products mentioned do not constitute endorsement. Liability is implied by or assumed for the use of information contained in this website.