CNY Celiac Support Group

Helping People With Gluten Intolerance in the CNY Area Live a Happy and Healthy Gluten-Free Lifestyle!






Mission Statement

The Central New York Celiac Support Group was formed to share support and understanding in helping us manage our lives well without gluten, and to create greater understanding of celiac disease and gluten sensitivity in both the lay and professional community.


Celiac and Gluten Sensitivity

For people with celiac disease, ingesting even tiny amounts of gluten can set off an autoimmune reaction that flattens the finger-like villi lining the small intestine. The most common symptoms are bloating, gas, diarrhea and constipation, as well as early osteoporosis. The autoimmune reaction can also cause skin rashes, chronic fatigue, bone and joint pain, neurological problems, liver problems, diabetes, infertility in both men and women and cancers, including lymphoma. An estimated three million Americans have celiac disease - and the vast majority don't know it because it can have no symptoms or mimic other diseases...

There are many undiagnosed cases of celiac disease. In order to get accurate test results, a person should not have been following a gluten-free diet. It is important to have accurate celiac testing because there are many negative effects of untreated celiac disease.

(From http://online.wsj.com)

More information:

What is gluten intolerance? What is celiac disease? (MNT article)
Celiac disease
Gluten sensitivity
Celiac Disease Centers
Gluten Free Resource Directory
Gluten-Free Diet Forum

 


 

Making Tracks for Celiacs

We are please to announce that Syracuse University chapter of the Public Relations Student Society of America and Yum-Yum's Gluten Free Bakery and Cafe are sponsoring Making Tracks for Celiacs.

Please join us on Saturday, May 1st on the Syracuse University quad in front of Hendrick's Chapel for the Making Tracks for Celiacs 5K walk/run, benefiting the Center for Celiac Research at Massachusetts General Hospital. The funds raised will support efforts to increase awareness, develop effective treatments and possibly, one day, find a cure. The run will be hosted by the Syracuse University chapter of the Public Relations Student Society of America and Yum-Yum's Gluten Free Bakery and Cafe.

Date: Sunday, May 1 -- rain or shine
Start time: Noon

Start and Finish: Syracuse University Quad, in front of Hendrick's Chapel
Distance: 5k
Registration: $25 adults, $15 children, $5 students
Suggested fundraising amount: $50

You can register here

If you have any questions about the event, please contact rrworkst@syr.edu.


 

Celiac disease and autoimmune-associated conditions

Celiac disease (CD) is frequently accompanied by a variety of extradigestive manifestations, thus making it a systemic disease rather than a disease limited to the gastrointestinal tract.....

... Continue Reading at PubMed.gov >>

  Download (pdf)



Need help one-on-one with the GF diet? You may want to schedule an appointment with Julie.

Hostital stays made safe for celiacs

Celiac disease or gluten intolerance -
Before you are admitted to the hospital
(PDF) 

Cecelia’s Marketplace Gluten-Free Grocery Shopping Guide, New Edition- Great reference for anyone who needs a GF diet.



All recommendations, information, dietary suggestions, product news, menus, recipes, and related data generated by the CNY Celiac Support Group are intended for the benefit of our members and other interested parties. Individuals should consult with their physician before following any medical or diet recommendations mentioned in this website. Food manufacturers' products are subject to formula change at any time, and these changes may not be reflected on labels. Products mentioned do not constitute endorsement. Liability is implied by or assumed for the use of information contained in this website.