CNY Celiac Support Group

Helping People With Gluten Intolerance in the CNY Area Live a Happy and Healthy Gluten-Free Lifestyle!









Mission Statement

The Central New York Celiac Support Group was formed to share support and understanding in helping us manage our lives well without gluten, and to create greater understanding of celiac disease and gluten sensitivity in both the lay and professional community.


Celiac and Gluten Sensitivity

For people with celiac disease, ingesting even tiny amounts of gluten can set off an autoimmune reaction that flattens the finger-like villi lining the small intestine. The most common symptoms are bloating, gas, diarrhea and constipation, as well as early osteoporosis. The autoimmune reaction can also cause skin rashes, chronic fatigue, bone and joint pain, neurological problems, liver problems, diabetes, infertility in both men and women and cancers, including lymphoma. An estimated three million Americans have celiac disease - and the vast majority don't know it because it can have no symptoms or mimic other diseases...

There are many undiagnosed cases of celiac disease. In order to get accurate test results, a person should not have been following a gluten-free diet. It is important to have accurate celiac testing because there are many negative effects of untreated celiac disease.

... Continue reading at http://online.wsj.com >>

More information:

What is gluten intolerance? What is celiac disease? (MNT article)

Celiac Disease - YouTube

Celiac disease
Gluten sensitivity
Celiac Disease Centers
Gluten Free Resource Directory
Gluten-Free Diet Forum


'Gluten-free' labeling standards kick in

By MARY CLARE JALONICK, Associated Press

August 5, 2014

In this Aug. 2, 2013, file photo, a variety of foods labeled Gluten Free are displayed in Frederick, Md., Friday, Aug. 2, 2013. Starting this week, "gluten free" labels on packaged foods have real meaning. Until now, the term "gluten free" had not been regulated, and manufacturers made their own decisions about what it means....

Read more..>>



Our Next Meeting

Date: November 16, 2014 2 pm – 4 pm

Topic: Gluten Free Before Gluten Free Was Cool

Speaker: Christine Krahling

Christine A. Krahling is a Writer’s Digest award-winning writer, a blogger and a former magazine editor. Her most recent essay, “Bloom Where You are Planted,” appears in the book, Nothing But the Truth So Help Me God: 73 Women on Life’s Transitions.

Christine has more than 20 years of experience raising a child with celiac disease. Most of that time was spent in what she refers to as “the gluten-free Stone Age” - before the advent of Facebook and Twitter, and way before celebrities gave a glamorous face to the gluten-free diet. Christine’s blog, “CeliacSavvy,” is her way of giving back to the celiac community. She has also developed a presentation titled, "When a Child has Celiac Disease: A Guide for Educators and Healthcare Professionals" and is available for speaking engagements on this and other topics.

Christine is also a book club facilitator and a fundraiser for Ronald McDonald House Charities of Central New York. Check out her blog and more of her writing at www.keepcalmandwrite.com. You can also follow her on Twitter @celiacsavvy and on Instagram with the username “celiacsavvy.”

Come and hear Christine’s inspiring talk on living gluten free.

Meeting Location: Town of DeWitt Community Room (next to E. Syracuse Fire Dept) 148 Sanders Creek Parkway
(off Kinne Street), E. Syracuse, NY. Take James St. to Kinne St. Turn left. Go exactly one mile to Sanders Creek Parkway. Turn right. The Community Room will be on the right, next to the Fire Department. Park in the lot on the left side of the building.



Dr. Beg is Assistant Professor of Pediatric Gastroenterology and Nutrition at SUNY Upstate University. Dr. Beg will give us an in-depth view of Celiac Disease, which will include a Power Point presentation.

He has also done much research on diseases associated with Celiac Disease, such as Down Syndrome.

Dr. Beg has received many awards and honors, including Best Doctors of America award.

Read More about Mirza Beg, MBBS, MD, AGAF >>




Celiac disease and autoimmune-associated conditions

Celiac disease (CD) is frequently accompanied by a variety of extradigestive manifestations, thus making it a systemic disease rather than a disease limited to the gastrointestinal tract.....

... Continue Reading at PubMed.gov >>

  Download (pdf)



Need help one-on-one with the GF diet? You may want to schedule an appointment with Julie.

Hostital stays made safe for celiacs

Celiac disease or gluten intolerance -
Before you are admitted to the hospital
(PDF) 

Vibrant Eating Culinary Classes
held at the Aspen House in the Radisson Community. Five course GF dinner.

All recommendations, information, dietary suggestions, product news, menus, recipes, and related data generated by the CNY Celiac Support Group are intended for the benefit of our members and other interested parties. Individuals should consult with their physician before following any medical or diet recommendations mentioned in this website. Food manufacturers' products are subject to formula change at any time, and these changes may not be reflected on labels. Products mentioned do not constitute endorsement. Liability is implied by or assumed for the use of information contained in this website.