CNY Celiac Support Group

Helping People With Gluten Intolerance in the CNY Area Live a Happy and Healthy Gluten-Free Lifestyle!

Mission Statement

The Central New York Celiac Support Group was formed to share support and understanding in helping us manage our lives well without gluten, and to create greater understanding of celiac disease and gluten sensitivity in both the lay and professional community.

Celiac and Gluten Sensitivity

For people with celiac disease, ingesting even tiny amounts of gluten can set off an autoimmune reaction that flattens the finger-like villi lining the small intestine. The most common symptoms are bloating, gas, diarrhea and constipation, as well as early osteoporosis. The autoimmune reaction can also cause skin rashes, chronic fatigue, bone and joint pain, neurological problems, liver problems, diabetes, infertility in both men and women and cancers, including lymphoma. An estimated three million Americans have celiac disease - and the vast majority don't know it because it can have no symptoms or mimic other diseases...

There are many undiagnosed cases of celiac disease. In order to get accurate test results, a person should not have been following a gluten-free diet. It is important to have accurate celiac testing because there are many negative effects of untreated celiac disease.

... Continue reading at >>

More information:

What is gluten intolerance? What is celiac disease? (MNT article)

Celiac Disease - YouTube

Celiac disease
Gluten sensitivity
Celiac Disease Centers
Gluten Free Resource Directory
Gluten-Free Diet Forum

Making Tracks for Celiacs
Center for Celiac Research At Massachusetts General

Saturday May 3, 2014
at Jamesville Beach Park

Pre-register online at by April 18th, or come early and register the morning of the walk

$20 registration fee ($25 after April 18th) T-shirts for those who pre-register.
Children 12 and under $10.00. Age 2 and under free (no shirts).

Gluten Free Taste of CNY
Gluten free restaurants and Vendors with samples.
Great Raffles.
Games, face painting & balloons for kids.
Prize for the most donations collected.

For more information or if available to help, call Karen Dorazio 469-8154 or email her at:

COLLECTING for the FOOD BANK OF CNY ~ For every gluten free non-perishable item you
bring to donate to our local food bank, you will receive two raffle tickets for our basket raffle.


Directions to Jamesville Beach,
From I-81 or I 690 to I 481, take exit 2, Jamesville Road. Go south on Jamesville Road into village of Jamesville. Take a RIGHT onto Route 173 then an immediate LEFT onto Apulia Road. 1.5 miles to park entrance, park is on your LEFT.

For free admission to the park, mention “Celiac Walk” at the entrance booth.

Our Next Meeting

Date: April 13, 2014, 2 pm – 4 pm

Topic: Celiac Disease

Speaker: Dr. Mirza B. Beg

Meeting Location: Town of DeWitt Community Room (next to E. Syracuse Fire Dept) 148 Sanders Creek Parkway
(off Kinne Street), E. Syracuse, NY. Take James St. to Kinne St. Turn left. Go exactly one mile to Sanders Creek Parkway. Turn right. The Community Room will be on the right, next to the Fire Department. Park in the lot on the left side of the building. See the Map >>

Dr. Beg is Assistant Professor of Pediatric Gastroenterology and Nutrition at SUNY Upstate University. Dr. Beg will give us an in-depth view of Celiac Disease, which will include a Power Point presentation.

He has also done much research on diseases associated with Celiac Disease, such as Down Syndrome.

Dr. Beg has received many awards and honors, including Best Doctors of America award.

Read More about Mirza Beg, MBBS, MD, AGAF >>

UNO Dough Raiser Sunday April 13th through Sunday May 4th

Just go to UNO and mention the Celiac Walk/Run to your server and UNO will donate up to 20% of your check to our cause.

Good for eat in or take out

Fayetteville and Clay locations!

Read More:   Fayetteville >>    Clay >>

Dementia: Is Gluten the Culprit?

Bret S. Stetka, MD, David Perlmutter, MD

January 2014

In his new book Grain Brain: The Surprising Truth About Wheat, Carbs, and Sugar -- Your Brain's Silent Killers, Dr. David Perlmutter, Associate Professor at the University of Miami School of Medicine, advocates that lifestyle modifications, starting with a high-fat, nearly carbohydrate-free diet, can prevent or greatly lower dementia risk and progression -- and he's armed with plenty of data to back up the claim. But detractors say the evidence isn't quite there. With Grain Brain about to hit its 15th straight week on the New York Times best-seller list (including a stint at the top spot) Medscape spoke with Dr. Perlmutter about his thoughts on the impact of carbohydrates and gluten on the brain...

Read more..>>

The Environment Within:
Exploring the Role of the Gut Microbiome in Health and Disease

Lindsey Konkel, Jayne Danska, Sarkis Mazmanian, Lisa Chadwick

December 2013

The human genome codes for approximately 23,000 genes,[1] yet some experts have suggested that the total information coded by the human genome alone is not enough to carry out all of the body's biological functions.[2] A growing number of studies suggest that part of what determines how the human body functions may be not only our own genes, but also the genes of the trillions of microorganisms that reside on and in our bodies..

Read more..>>

Celiac disease and autoimmune-associated conditions

Celiac disease (CD) is frequently accompanied by a variety of extradigestive manifestations, thus making it a systemic disease rather than a disease limited to the gastrointestinal tract.....

... Continue Reading at >>

  Download (pdf)


Need help one-on-one with the GF diet? You may want to schedule an appointment with Julie.

Hostital stays made safe for celiacs

Celiac disease or gluten intolerance -
Before you are admitted to the hospital (PDF)

Cecelia’s Marketplace Gluten-Free Grocery Shopping Guide, New Edition-
Great reference for anyone who needs a GF diet.

All recommendations, information, dietary suggestions, product news, menus, recipes, and related data generated by the CNY Celiac Support Group are intended for the benefit of our members and other interested parties. Individuals should consult with their physician before following any medical or diet recommendations mentioned in this website. Food manufacturers' products are subject to formula change at any time, and these changes may not be reflected on labels. Products mentioned do not constitute endorsement. Liability is implied by or assumed for the use of information contained in this website.