CNY Celiac Support Group

Helping People With Gluten Intolerance in the CNY Area Live a Happy and Healthy Gluten-Free Lifestyle!

Mission Statement

The Central New York Celiac Support Group was formed to share support and understanding in helping us manage our lives well without gluten, and to create greater understanding of celiac disease and gluten sensitivity in both the lay and professional community.

Celiac and Gluten Sensitivity

For people with celiac disease, ingesting even tiny amounts of gluten can set off an autoimmune reaction that flattens the finger-like villi lining the small intestine. The most common symptoms are bloating, gas, diarrhea and constipation, as well as early osteoporosis. The autoimmune reaction can also cause skin rashes, chronic fatigue, bone and joint pain, neurological problems, liver problems, diabetes, infertility in both men and women and cancers, including lymphoma. An estimated three million Americans have celiac disease - and the vast majority don't know it because it can have no symptoms or mimic other diseases...

There are many undiagnosed cases of celiac disease. In order to get accurate test results, a person should not have been following a gluten-free diet. It is important to have accurate celiac testing because there are many negative effects of untreated celiac disease.


More information:

What is gluten intolerance? What is celiac disease? (MNT article)
Celiac disease
Gluten sensitivity
Celiac Disease Centers
Gluten Free Resource Directory

Eating Gluten-Free for Health

Gluten-Free Diet Forums & Blogs:

Gluten-Free Diet Forum - Easy Gluten Free Recipes - Your Guide to All-things Gluten-free! - Eat Out - Cook - Shop - Cooking for Multiple Diets - Natural and Honest Food: Shop, Recipes, BlogStores - GF Recipes

Our Next Meeting

Date: September 10-th, 2017, 2 – 4 pm

Topic: Winning Without Gluten

Speaker: Kristen Beilein

Meeting Location: Natur-Tyme Health Store, Community Room, 3160 Erie Blvd E., Dewitt NY

Diagnosed with Celiac Disease in the fall of 2006, Kristen (Taylor) Beilein was competing at the highest level of Division I lacrosse at the University of North Carolina and on the United States Development team. The diagnosis came after months of declining health, extreme fatigue, neurological setbacks, dizziness, and GI struggles.

Kristen recalls the challenges of being diagnosed with Celiac both as a college student & an athlete during a time when there was little awareness of the disease. Despite the many setbacks, Kristen was able to complete her career as a 4-year student athlete at UNC and has since lived and worked in New York City (Ralph Lauren & Nike) , Portland Oregon (Nike), and is now living back in Syracuse where she began her own Special Events & Brand Consulting company.

During her time living in Oregon, Kristen established a gluten free blog for athletes (‘Winning Without Gluten’) which she is no longer writing, however, she continues to remain very involved in the Celiac community and is thrilled for the opportunity to join CNY Celiacs and looks forward to sharing more about her journey!

Need help one-on-one with the GF diet? You may want to schedule an appointment with Julie.

Hostital stays made safe for celiacs

Celiac disease or gluten intolerance -
Before you are admitted to the hospital

Cecelia’s Marketplace Gluten-Free Grocery Shopping Guide, New Edition- Great reference for anyone who needs a GF diet.

All recommendations, information, dietary suggestions, product news, menus, recipes, and related data generated by the CNY Celiac Support Group are intended for the benefit of our members and other interested parties. Individuals should consult with their physician before following any medical or diet recommendations mentioned in this website. Food manufacturers' products are subject to formula change at any time, and these changes may not be reflected on labels. Products mentioned do not constitute endorsement. Liability is implied by or assumed for the use of information contained in this website.