CNY Celiac Support Group

Helping People With Gluten Intolerance in the CNY Area Live a Happy and Healthy Gluten-Free Lifestyle!

Mission Statement

The Central New York Celiac Support Group was formed to share support and understanding in helping us manage our lives well without gluten, and to create greater understanding of celiac disease and gluten sensitivity in both the lay and professional community.

Celiac and Gluten Sensitivity

For people with celiac disease, ingesting even tiny amounts of gluten can set off an autoimmune reaction that flattens the finger-like villi lining the small intestine. The most common symptoms are bloating, gas, diarrhea and constipation, as well as early osteoporosis. The autoimmune reaction can also cause skin rashes, chronic fatigue, bone and joint pain, neurological problems, liver problems, diabetes, infertility in both men and women and cancers, including lymphoma. An estimated three million Americans have celiac disease - and the vast majority don't know it because it can have no symptoms or mimic other diseases...

There are many undiagnosed cases of celiac disease. In order to get accurate test results, a person should not have been following a gluten-free diet. It is important to have accurate celiac testing because there are many negative effects of untreated celiac disease.

... Continue reading at >>

More information:

What is gluten intolerance? What is celiac disease? (MNT article)

Celiac Disease - YouTube

Celiac disease
Gluten sensitivity
Celiac Disease Centers
Gluten Free Resource Directory
Gluten-Free Diet Forum

Making Tracks for Celiacs Center for Celiac Research At Massachusetts General

SUNDAY April 26-th 2015

Jamesville Beach Park, Jamesville, NY

We had a great turnout for the walk - a - thon. Thank you!

Thank you to all of you who turned out for, donated to, or volunteered for another successful year of our Making Tracks for Celiacs event at Jamesville Beach Park. We would also like to thank our main sponsors Wegmans and King Davids; our participating sponsor Holistic Blends and our contributing sponsors Yum Yum's Bakery & Cafe', Natur-Tyme, Tops and Hunka Foods. We would also like to thank all of our vendors who turned out to hand out samples or literature on their gluten free products. Our vendors included Wegmans, Holistic Blends, Yum Yum's Bakery & Cafe', Broadway Cafe'/Arctic Island, Trader Joe's, Deborah's Sweet Treats, Natur-Tyme, Cabot Cheese, Dave & Busters, Outback Steakhouse, Hunka Foods and Pink Syracuse.

Through all of your efforts, we will be able to make a large donation to the Center for Celiac Research at the University of Massachusetts and also help many local gluten free families who are struggling to keep up with this very expensive diet.

We would also like to thank Carolyn Mayer and her Mom for putting together the amazing baskets for the raffle again this year. They do a phenomenal job! Thank you to Julie Procopio for getting all of those donations for the goody bags and all the volunteers who helped her put them together. Thank you to Jay Brandt and Harold Muller for coming all the way from Chittenango to do the timing for the run. We wouldn't be able to have this amazing 5k run without them.

Looking forward to next year!
Karen Dorazio
Event Coordinator

Celiac Strong Summer Camp in Ithaca, NY

July 26-29, 2015

Celiac Strong Camp 2015

This camp is worry-free place for boys and girls with Celiac or gluten intolerance between 7-16 years old. The camp will be located at Comstock (Taughannock Blvd, Ithaca, NY 14850), a Girl Scout camp in Ithaca, NY.

Registration is open and there are 37 spots left ( April 7-th). REGISTRATION CLOSES JUNE 1-ST!

For More Information and Registration visit

Celiac disease and autoimmune-associated conditions

Celiac disease (CD) is frequently accompanied by a variety of extradigestive manifestations, thus making it a systemic disease rather than a disease limited to the gastrointestinal tract.....

... Continue Reading at >>

  Download (pdf)

Need help one-on-one with the GF diet? You may want to schedule an appointment with Julie.

Hostital stays made safe for celiacs

Celiac disease or gluten intolerance -
Before you are admitted to the hospital

Cecelia’s Marketplace Gluten-Free Grocery Shopping Guide, New Edition-
Great reference for anyone who needs a GF diet.

All recommendations, information, dietary suggestions, product news, menus, recipes, and related data generated by the CNY Celiac Support Group are intended for the benefit of our members and other interested parties. Individuals should consult with their physician before following any medical or diet recommendations mentioned in this website. Food manufacturers' products are subject to formula change at any time, and these changes may not be reflected on labels. Products mentioned do not constitute endorsement. Liability is implied by or assumed for the use of information contained in this website.